10/18 – The Test

Today is the day! I will FINALLY have the last test I need to find out if I need a heart transplant or not, after waiting since June. I mean, it feels like I do, but the test may say different. If the test comes back that I’m not sick enough yet, I worry about how much worse I will get. I am already so limited but I am aware it can get worse, much worse. 

Being chronically ill just sucks. I don’t care if you have heart disease, lupus, cystic fibrosis, crohn’s, anxiety, depression, fibromyalgia or any other chronic illness, it sucks. 

No one will ever experience what you endure and you are alone in your fight. You have to listen to your body and do everything you can to help it. I know so many people with the same heart disease as me, ARVD, but none of our journeys are the same. Despite the bad days, the days you don’t even understand what is wrong with you, you fight on. No matter how hard, move forward. 


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