Maudie Kay | 25 | DFW, TX

I was diagnosed with a rare heart disease known as ARVD in 2006. The same year I received my first ICD and things have been progressing since. I often am unsure if early diagnosis has benefited or hurt me, it’s an answer I may never have a definitive opinion on. Present day I’m unemployed, waiting to be approved for disability as I undergo the extensive testing to be listed on the heart transplant list. The last year of my life has been filled with the lowest lows and the highest highs. This is my journey and I will continue to try and optimize my experience, even if writing is all I have energy to do.